Spinal muscular dystrophy: give access to treatment quickly

  • December 13, 2021
Stéthoscope posé derrière un calendrier

The context

The complaint

The boy’s mother became impatient. As she saw it, if the hospital could not provide Spinraza quickly, then her son should be referred to another hospital. She complained to the Québec Ombudsman.

What the investigation showed

The outcome

The Québec Ombudsman intervened with the institution responsible for the services provided by the hospital concerned. The institution pledged to finish organizing its services as soon as possible. The boy’s treatments finally began in late summer 2020.

This case was taken from our 2020-2021 Annual Report.

The Québec Ombudsman ensures that your rights are upheld in your dealings with Québec public services. Are you dissatisfied with the services of a Government of Québec department or agency? Or with those of a health and social services network institution (2nd level of recourse)? File a complaint with the Québec Ombudsman by calling 1-800-463-5070 or use our online complaint form.